Resources

Video

Podcast Episode 4: Insights On The HRSA Blueprint For Change

Craig Newman has a conversation with Sarah McLellan of HRSA about their Blueprint for Change.

Video

Connections Between NBS and Birth Defect Surveillance Programs

Podcast Episode 3: Interoperability - Connections Between NBS and Birth Defect Surveillance Programs

Craig Newman has a conversation with Dr. Russell Kirby of the University of South Florida about the interactions between newborn screening and birth defect surveillance programs.

PDF

INBSI Annual Meeting (Part 2) HRSA Presentation Slides

The slides that our Project Officer, Kim Morrison (HRSA), used to present about the future of interoperability.

Video

Improving Interoperability By Standardizing Newborn Screening Data & EMR Reporting

In this presentation, we discuss newborn screening data and how newborn screening results are displayed to clinicians for blood spots, point of care hearing screenings and critical congenital heart defects (CCHD)

 

Presenters: Joseph Schneider, MD, MBA, FAAT and Daniel Rutz, Epic Total Time: 59 mins. 56 sec.

Webinar

The Art of Demographics Transmission- How ADT messages connect to hospitals.

In this presentation, we discuss: 1) Brief Introduction and Background to Electronic Demographics. 2) Newborn Admission Notification- What is it? 3) How ADT messages are used in Minnesota. 4) Discuss technical aspects of NANI and the benefits of implementing NANI and 5) Discussion: What do You need in terms of electronic transmission of demographic information? Presenters: Dr. Terese Finitzo and Heather Brand Total Time: 46 mins. 29 sec.

Webinar

Logic Modeling

Participants will learn about what a logic model is, the purpose of a logic model for program planning and evaluation, explains the components of a logic model, highlights different types of logic model templates and explains the advantages and disadvantages of using logic models. Total Time 51 min 24 sec

Webinar

CDC’s Public Health Laboratory ETOR Initiative

This presentation details the CDC’s Public Health Laboratory ETOR Initiative for newborn screening programs.

Presented by Rebecca McNall & Jasmine Chaitram [CDC].

Total time: 44 minutes, 44 seconds

Webinar

Tools for Helping Improve or Establish Data Reporting for CCHD

Tools for Helping Improve or Establish Data Reporting for CCHD- AnnaMarie Saarinen and Dr. John Phillips

Total Time: 1 hour and 1 minute

Video

Podcast Episode 2: Interoperability - Overcoming the Overwhelming

Podcast Episode 2: Interoperability - Overcoming the Overwhelming

Podcast 2 episode, we talk to Laura Pabst who leads birth defects and neonatal abstinence syndrome surveillance at CDC. This episode follows her journey into the work of interoperability and her hopes for the future of interoperability.

Video

Podcast Episode 1: Educating Providers on Public Health

The INBSI Project has a podcast series now available. This is the first episode of our podcast series! 

Podcast 1: Educating Providers on Public Health

Podcast 1 episode, we talk to some of Altarum’s experts in Public Health, Dr. Tara Fowler, and Sheryl Mathis.  Altarum, is a non-profit company that does health research and consulting.  Both Tara and Sheryl will give us a high-level summary of their experience in public health and the importance of the field as it relates to interoperability and newborn screening. 

 

 

Webinar

Interoperability Speed Dating

This presentation provides several links and information that exists in the area of interoperability. This webinar is presented by Craig Newman (Altarum). Total time: 43 min. 18 sec.

Webinar

Electronic Case Reporting (eCR)

This presentation discusses Electronic Case Reporting (eCR), presented by Laura Conn from CDC. Total 59 mins 46 sec.

Video

Onboarding and Testing Birthing Hospitals for Newborn Screening Interoperability

This presentation discusses onboarding and testing birthing hospitals for newborn screening interoperability. Presented by Craig Newman and Marina Goulas- INBSI Project at Altarum. Length 50 min 14 sec.

Video

Interoperability: Measuring and Demonstrating Benefits, Amy Gaviglio

ECHO didactic presentation. October 7, 2022- Interoperability: Measuring and Demonstrating Benefits, Amy Gaviglio. Length 19 min 46 sec.

Video

INBSI ECHO cohort 2 Kick-Off session

INBSI ECHO cohort 2 Kick-Off presentation- Sept 2022. Length 11 min 14 sec.

Webinar

Closing the CCHD Data Gap: Evolution and Implementation of a Minimal Data Set

In this webinar, you will hear from presenters Amy Gaviglio and Lisa Hom. Total length: 1 hour 45 secs.

Video

Staffing and Project Management

ECHO didactic presentation February 4, 2022. This video provides a high-level overview of the different roles involved in interoperability. Total length 18 min. 33 sec.

Video

Prioritizing Interoperability: Stakeholder Engagement and Buy-in

ECHO didactic presentation January 7, 2022. Learn techniques to improve interoperability between state newborn screening programs and health information systems, increase knowledge regarding newborn screening data exchange standards, and network and problem-solve with others. Total length 13 min. 49 sec.

Video

Types and Scope of Interoperability

ECHO didactic presentation December 3, 2021. Learn from Pediatrician Dr. Brandan Kennedy, MD, FAAP Director of Medical Informatics, at Children's Mercy Kansas City about the Types and Scope of Interoperability. Total length 14 min 11 sec.

Video

Xanadu: Goals of Interoperability lecture

ECHO didactic presentation November 5, 2021. Total length 17 min 59 sec.

Fact Sheet

INBSI Project ECHO® Learning Series

Newborn screening programs engage via the ECHO (Extension for Community Healthcare Outcomes) model®, to connect public health professionals with subject matter experts fostering an “all teach, all learn” approach. The ECHO Model® uses brief lectures and real-life presentations to facilitate the practical application of interoperability concepts. The educational series aims to increase the capacity for states/jurisdictions to manage the implementation of their newborn screening interoperability projects. Using video conference technology, project management tools, and scenario-based learning, participants will develop knowledge and self‐efficacy regarding newborn screening interoperability.

Fact Sheet

What is INBSI?

Innovations in Newborn Screening Interoperability (INBSI) is a program initiative funded by the Health Resources and Services Administration Health (HRSA) and led by Altarum. The goal of INBSI is to reduce morbidity and mortality associated with heritable disorders in newborns by enhancing data sharing between state-led newborn screening (NBS) systems and healthcare providers.

Video

Interoperability: Measuring and Demonstrating Benefits

This video discusses common struggles and barriers to achieving project approvals. It also outlines ways to effectively communicate benefits and measure efficiencies gained by interoperability. Total Length: 22 minutes.

Self Assessment

Interoperability for Public Health Agencies: A Self-assessment Tool

Authors: Public Health Informatics Institute
Description: Interoperability is defined as the ability of different information technology systems and software applications to communicate, exchange data, and use the information that has been exchanged. This companion to the Informatics-savvy Health Department Self-assessment allows agencies to score and assess their own interoperability capacity. 

Self Assessment

The informatics-savvy Health Department Self-Assessment Tool

Authors: Public Health Informatics Institute
Description: This self-assessment tool will be the chief focus of the stakeholder group convened to assess the agency. It allows the stakeholders to move through each component of the Capability Maturity Model and score their agency on individual capacities to inform future capacity building activities.

Self Assessment

Informatics Self-Assessment Tool for Public Health Laboratories

Authors: Association of Public Health Laboratories, Laboratory Efficiencies Initiative, Centers for Disease Control and Prevention
Type: A self-assessment tool
Description: Launched in 2013 by APHL and the CDC's Division of Laboratory Systems, the Informatics Self-Assessment Tool has been recently revised to better meet user requirements. The tool allows public health laboratories to assess strengths and gaps in informatics capability by addressing 19 critical operational areas.

Self Assessment

Increasing Capability for EHDI-EHR Interoperability: A self-assessment tool

Authors: Public Health Informatics Institute
Description: The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) has partnered with the Public Health Informatics Institute (PHII) to develop a self-assessment activity designed to increase the EHDI program’s capability to exchange electronic health information with clinical electronic health record systems (EHRs).

Training

HL7 Fundamentals

THIS IS A PAID COURSE

Cost: See HL7 website (discount for HL7 members)
Author: HL7 International
Type: Self-paced online course
Time Length: 12 weeks, 5-7 hours of work per week
Competencies: Standards
Learning Objectives: 

  • Confront a project involving interoperability among disjointed healthcare information systems
  • Read the most widely used HL7 standards
  • Understand the need for controlled vocabularies, master files, and entity registries
  • Read and write V2.X messages
  • Read and write CDA® R2 documents
  • Identify FHIR® specifications and resources
  • Decide when to use each artifact (messages, documents)

Toolkit

Newborn Screening Coding and Terminology Guide

Description: Website includes standard codes and terminology for newborn tests and the conditions for which they screen

Toolkit

Reframing Public Health Informatics: A communications Toolkit

Authors: Public Health Informatics Institute, Frameworks Institute
Competencies: Strategy & Communication

  • Description: Define, describe, and communicate the field of public health informatics - what it is, how it works, and why its contributions are so important to achieving the goal of improved population health.

Toolkit

Building Blocks: Newborn Screening Health IT Implementation Guide and Toolkit | NewSTEPs

Link: Building Blocks: Newborn Screening Health IT Implementation Guide and Toolkit | NewSTEPs
Author: NewSTEPs, J Michael Consulting
Competencies: Implementation, Standards, Interoperability

  • Description: Addresses the diverse audiences related to initiating and sustaining this project and outlines steps needed to set up electronic messaging with partners. Provides practical information to project teams that are instituting electronic messaging for NBS programs.

Training

Why Clinical Terminology Matters

Author: David Markwell, SNOMED
Type: Webinar
Time Length: 33 Minutes 
Competencies: Standards, Interoperability
Learning Objectives:

  • Understand what clinical terminology is
  • Describe the use of standardized clinical terminology
  • Describe simple first steps for using the standardized clinical terminology

Training

Evaluation for Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 35 Minutes 
Competencies: Evaluation & Analysis
Learning Objectives:

  • Define evaluation in the context of public health informatics and discuss why evaluation is necessary.
  • Discuss the difference between Formative and Summative evaluation.
  • Define models that guide Public Health Informaticians regarding what to evaluate.
  • Describe a framework and strategy for evaluating public health information systems.
  • Describe the steps for conducting an evaluation utilizing an existing evaluation framework.

Training

Introduction to Laboratory Informatics: Life of a Result

Authors: CDC, APHL
Type: Self-paced Module
Time Length: 2 Hours
Competencies: Standards, Interoperability, Evaluation & Analysis
Learning Objectives:

  • Identify where and how data and results are stored inside the laboratory.
  • Recognize how data and results can follow to impact the health of individual patients and the public.
  • Recognize how the proper recording, coding, storage, and transmission of data and result can impact patient care and public health.
  • Identify what data standards are used, their purpose, and the components involved.
  • Explain what Electronic Test Orders and Results (ETOR), Electronic Laboratory Reporting (ELR), and Electronic Health Record (EHR) are and how they differ.

Training

Introduction to Laboratory Informatics: Life of a Specimen

Authors: CDC, APHL
Type: Self-paced Module
Time Length: 2 Hours
Competencies: Standards, Interoperability, Evaluation & Analysis
Learning Objectives:

  • Recognize what laboratory informatics is and how it directly supports patient care and public health goals.
  • Identify who plays a role in laboratory informatics and explain the purpose of each role.
  • Identify the sequence of data and information flow within the laboratory from specimen collection/receipt to specimen storage/disposal.
  • Recognize the importance of data quality and data factors that impact data quality.
  • Identify the different types of data standards and the importance of using those standards.
  • Define what Laboratory Information Management System (LIMS) and Laboratory Information System (LIS) are, their capabilities, and how they differ from other systems used in the laboratory.

Training

Key Concepts and Terminology in Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 1 Hour
Competency: Standards, Interoperability, Business Analysis
Learning Objectives:

  • Define public health informatics.
  • Discuss the value proposition for public health informatics.
  • Define business process analysis.
  • Describe the role of business process analysis in public health informatics.
  • Describe the role of standards relevant to informatics projects and public health information systems.
  • Discuss contemporary topics in public health informatics, such as Meaningful Use, electronic lab reporting, and electronic case reporting.

Training

Communicating Informatics

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Type: Series of short videos
Time Length: 5 minutes
Competencies: Strategy & Communication
Learning Objectives:

  • Describe public health informatics using analogies to logistics, architecture, and translation. 

Training

Informatics for Everyone

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Type: Series of short videos
Time Length: 15 minutes
Competencies: Strategy & Communication
Learning Objectives: 

  • Describe public health informatics in action from three perspectives: the practitioner, program manager, and senior leader.

Training

Communicating the Value of Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 40 Minutes
Competencies: Strategy & Communication
Learning Objectives:

  • Define the 7 Principles of Effective Communication.
  • Define and communicate informatics to technical and non-technical audiences.
  • Describe the essentials of a good elevator speech.
  • Discuss knowledge overlaps and gaps and how to communicate and engage with stakeholders.