Resources

Fact Sheet

INBSI Project ECHO® Learning Series

Newborn screening programs engage via the ECHO (Extension for Community Healthcare Outcomes) model®, to connect public health professionals with subject matter experts fostering an “all teach, all learn” approach. The ECHO Model® uses brief lectures and real-life presentations to facilitate the practical application of interoperability concepts. The educational series aims to increase the capacity for states/jurisdictions to manage the implementation of their newborn screening interoperability projects. Using video conference technology, project management tools, and scenario-based learning, participants will develop knowledge and self‐efficacy regarding newborn screening interoperability.

Fact Sheet

What is INBSI?

Innovations in Newborn Screening Interoperability (INBSI) is a program initiative funded by the Health Resources and Services Administration Health (HRSA) and led by Altarum. The goal of INBSI is to reduce morbidity and mortality associated with heritable disorders in newborns by enhancing data sharing between state-led newborn screening (NBS) systems and healthcare providers.

Video

Recruitment Video

Check out our recruitment video and attached flyers

Here is what you should know:

INBSI

The Innovations in Newborn Screening Interoperability (INBSI) is a HRSA funded project with the goal of reducing the morbidity and mortality associated with heritable disorders in newborns and children. Our focus is on preparing Public Health programs to receive and share newborn screening data electronically.  To do this, we provide direct technical assistance, various education modalities that can be attended live in our monthly webinars, and access to our Resource Center. 

We are actively recruiting states to enter our hands-on Technical Assistance process. INBSI works with enrolled states to perform a Readiness Assessment on your current interoperability capacity and then we collaborate on developing a customized Interoperability Roadmap to help you achieve your data exchange goals. The simple, one page, application is available on our website, and we’re asking all applications be submitted by COB September 1st .  Please reach out with any questions you may have about applying for the Technical Assistance program, our trainings or accessing the Resource Center.
  
Need to contact us directly?
Just email us at: NBSInterop@altarum.org

Project ECHO

The INBSI program invites state teams to join the AAP led Project ECHO learning collaborative aimed to advance electronic data exchange and interoperability between state newborn screening and healthcare information systems. Participants will learn techniques to improve interoperability between state newborn screening programs and heath information systems, increase knowledge regarding newborn screening data exchange standards, and network and problem solve with other newborn screening programs and interoperability experts.  Sessions occur monthly on the first Friday of each month.  Regardless of completion of a readiness assessment, we encourage you to participate. Learn more about INBSI and ECHO through the attached documents.

Interested?

When:  1st Friday of the month

Time: 12:00 – 1:00 pm CST

Register online here  by August 12th, 2022

Contact Kristin Conrad, ECHO Manager at kconrad@aap.org for any questions.

 

Video

Approaches to Interoperability: The Iowa Experience

We will hear from Dr. Paul Romitti regarding Iowa’s experience in developing a surveillance system in congenital disorders including expanding their work to include life course surveillance.  

Video

Breaking Down Silos Across Public Health – Lessons Learned from Your Immunization Neighbors

In this video, you will hear from representatives of the immunization community on how they have approached interoperability, the successes they have had and how their lessons learned can be applied to newborn screening. Total length 55 mins 51 secs.

Webinar

Laying the Groundwork for Interoperability – What EHDI got right.

This webinar will discuss the early EHDI history and what CDC EHDI got right. John Eichwald and Xidong Deng will talk about how CDC laid the foundation for EHDI interoperability.  

Video

Onboarding Process

This presentation we will go over the process of onboarding a birth hospital for newborn screening HL7 orders and results. We will define what onboarding is and review each of the different stages of onboarding and their sub-steps at a high level. Total length: 10min 14 sec.

Video

Hospital Engagement: What Hospitals need to engage in newborn screening electronic data exchange

This webinar is an open discussion on: Techniques to engage hospitals in interoperability efforts Illustrate return on investment tips for hospital leadership Understand the needs/priorities of hospital IT How interoperability is a patient safety initiative.

Video

Interoperability: Measuring and Demonstrating Benefits

This video discusses common struggles and barriers to achieving project approvals. It also outlines ways to effectively communicate benefits and measure efficiencies gained by interoperability. Total Length: 22 minutes.

Video

Staffing and Project Management

This video provides a high-level overview of the different roles involved in interoperability.

Webinar

Playing with FHIR: What is it and how can it help public health?

We'll explore the newest interoperability standard

Video

Prioritizing Interoperability: Stakeholder Engagement and Buy-in

Participants will learn techniques to improve interoperability between state newborn screening programs and heath information systems, increase knowledge regarding newborn screening data exchange standards, and network and problem solve with others.

Webinar

The Future of Newborn Screening Why Standardization Matters for Interoperability

This presentation will explain why standardization matters for interoperability.

Webinar

How Health Information Exchanges (HIEs) Support Newborn Screening Interoperability

In this webinar, you will learn from Pediatricians Brandan Kennedy, MD, FAAP Director of Medical Informatics, Children's Mercy Kansas City and Marc Rabner, MD, MPH Clinical Advisor, CRISP Director Clinical Applications, Audacious Inquiry; about how HIEs can work with state newborn screening programs and birthing hospitals to improve electronic data exchange.

Video

Xanadu: Goals of Interoperability lecture

 Goals of Interoperability lecture. Total length: 17 mins 59 sec

Webinar

Project Management Tips and tricks for self-evaluation, feedback and stakeholder engagement

This webinar will help you recognize types of stakeholders and identify strategies to communicating effectively with stakeholders, understand the importance of self-evaluation, and recognize the importance of soliciting feedback. Total length: 57 min 58 sec.

Webinar

Exploring HL7 v2 – A Walk Through the Base Standard and Messages

In the first part of this webinar we describe the different types of HL7 V2 messages and their trigger events, and lastly go over how to read an HL7 V2 result message. In the second part of this webinar we look at where to find the documentation of the standard, what it contains and how to read it. As you become more familiar with the technical aspects of newborn screening interoperability, it will be important to be able to navigate the base standard and read the documentation on how to construct and use v2 messages. Total length: 57 min 32 sec.

Self Assessment

Interoperability for Public Health Agencies: A Self-assessment Tool

Authors: Public Health Informatics Institute
Description: Interoperability is defined as the ability of different information technology systems and software applications to communicate, exchange data, and use the information that has been exchanged. This companion to the Informatics-savvy Health Department Self-assessment allows agencies to score and assess their own interoperability capacity. 

Self Assessment

The informatics-savvy Health Department Self-Assessment Tool

Authors: Public Health Informatics Institute
Description: This self-assessment tool will be the chief focus of the stakeholder group convened to assess the agency. It allows the stakeholders to move through each component of the Capability Maturity Model and score their agency on individual capacities to inform future capacity building activities.

Self Assessment

Informatics Self-Assessment Tool for Public Health Laboratories

Authors: Association of Public Health Laboratories, Laboratory Efficiencies Initiative, Centers for Disease Control and Prevention
Type: A self-assessment tool
Description: Launched in 2013 by APHL and the CDC's Division of Laboratory Systems, the Informatics Self-Assessment Tool has been recently revised to better meet user requirements. The tool allows public health laboratories to assess strengths and gaps in informatics capability by addressing 19 critical operational areas.

Self Assessment

Increasing Capability for EHDI-EHR Interoperability: A self-assessment tool

Authors: Public Health Informatics Institute
Description: The National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention (CDC) has partnered with the Public Health Informatics Institute (PHII) to develop a self-assessment activity designed to increase the EHDI program’s capability to exchange electronic health information with clinical electronic health record systems (EHRs).

Training

HL7 Fundamentals

THIS IS A PAID COURSE

Cost: See HL7 website (discount for HL7 members)
Author: HL7 International
Type: Self-paced online course
Time Length: 12 weeks, 5-7 hours of work per week
Competencies: Standards
Learning Objectives: 

  • Confront a project involving interoperability among disjointed healthcare information systems
  • Read the most widely used HL7 standards
  • Understand the need for controlled vocabularies, master files, and entity registries
  • Read and write V2.X messages
  • Read and write CDA® R2 documents
  • Identify FHIR® specifications and resources
  • Decide when to use each artifact (messages, documents)

Training

Designing and Managing Public Health Information Systems

THIS IS A PAID COURSE

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Cost: See Informatics Academy website
Type: Instructor-support distance learning course
Time Length: 8 weeks, refer to the link for upcoming dates
Competencies: Strategy & Communication, Project Management
Learning Objectives: 

  • Understand best practices in informatics and apply them to your informatics projects.
  • List the guiding principles of the IT lifecycle and apply them to your informatics projects.
  • Build effective collaborative relationships with your team members.
  • Define the purpose of the IT Lifecycle.
  • Identify the different roles of people involved in an informatics project and the related responsibilities.
  • Describe, for each phase in the IT Lifecycle, its purpose, outputs, key tasks, barriers/challenges, and exit criteria.
  • Identify where the project is in the IT Lifecycle given a description of a project’s current status.
  • Describe the risks associated with not adequately completing each phase of the IT Lifecycle given a description of a project’s current status.

Toolkit

Newborn Screening Coding and Terminology Guide

Description: Website includes standard codes and terminology for newborn tests and the conditions for which they screen

Toolkit

Reframing Public Health Informatics: A communications Toolkit

Authors: Public Health Informatics Institute, Frameworks Institute
Competencies: Strategy & Communication

  • Description: Define, describe, and communicate the field of public health informatics - what it is, how it works, and why its contributions are so important to achieving the goal of improved population health.

Toolkit

Building Blocks: Newborn Screening Health IT Implementation Guide and Toolkit | NewSTEPs

Link: Building Blocks: Newborn Screening Health IT Implementation Guide and Toolkit | NewSTEPs
Author: NewSTEPs, J Michael Consulting
Competencies: Implementation, Standards, Interoperability

  • Description: Addresses the diverse audiences related to initiating and sustaining this project and outlines steps needed to set up electronic messaging with partners. Provides practical information to project teams that are instituting electronic messaging for NBS programs.

Training

Why Clinical Terminology Matters

Author: David Markwell, SNOMED
Type: Webinar
Time Length: 33 Minutes 
Competencies: Standards, Interoperability
Learning Objectives:

  • Understand what clinical terminology is
  • Describe the use of standardized clinical terminology
  • Describe simple first steps for using the standardized clinical terminology

Training

Evaluation for Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 35 Minutes 
Competencies: Evaluation & Analysis
Learning Objectives:

  • Define evaluation in the context of public health informatics and discuss why evaluation is necessary.
  • Discuss the difference between Formative and Summative evaluation.
  • Define models that guide Public Health Informaticians regarding what to evaluate.
  • Describe a framework and strategy for evaluating public health information systems.
  • Describe the steps for conducting an evaluation utilizing an existing evaluation framework.

Training

Introduction to Laboratory Informatics: Life of a Result

Authors: CDC, APHL
Type: Self-paced Module
Time Length: 2 Hours
Competencies: Standards, Interoperability, Evaluation & Analysis
Learning Objectives:

  • Identify where and how data and results are stored inside the laboratory.
  • Recognize how data and results can follow to impact the health of individual patients and the public.
  • Recognize how the proper recording, coding, storage, and transmission of data and result can impact patient care and public health.
  • Identify what data standards are used, their purpose, and the components involved.
  • Explain what Electronic Test Orders and Results (ETOR), Electronic Laboratory Reporting (ELR), and Electronic Health Record (EHR) are and how they differ.

Training

Introduction to Laboratory Informatics: Life of a Specimen

Authors: CDC, APHL
Type: Self-paced Module
Time Length: 2 Hours
Competencies: Standards, Interoperability, Evaluation & Analysis
Learning Objectives:

  • Recognize what laboratory informatics is and how it directly supports patient care and public health goals.
  • Identify who plays a role in laboratory informatics and explain the purpose of each role.
  • Identify the sequence of data and information flow within the laboratory from specimen collection/receipt to specimen storage/disposal.
  • Recognize the importance of data quality and data factors that impact data quality.
  • Identify the different types of data standards and the importance of using those standards.
  • Define what Laboratory Information Management System (LIMS) and Laboratory Information System (LIS) are, their capabilities, and how they differ from other systems used in the laboratory.

Training

Key Concepts and Terminology in Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 1 Hour
Competency: Standards, Interoperability, Business Analysis
Learning Objectives:

  • Define public health informatics.
  • Discuss the value proposition for public health informatics.
  • Define business process analysis.
  • Describe the role of business process analysis in public health informatics.
  • Describe the role of standards relevant to informatics projects and public health information systems.
  • Discuss contemporary topics in public health informatics, such as Meaningful Use, electronic lab reporting, and electronic case reporting.

Training

Getting Started with CDRM (Informatics)

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Type: Series of short videos with links to additional resources
Time Length: 30 minutes
Competencies: Business Analysis
Learning Objectives: 

  • Describe the three phases of PHII's Collaborative Requirements Development Methodology. Describe the importance of defining information needs and documenting work processes.

Training

Communicating Informatics

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Type: Series of short videos
Time Length: 5 minutes
Competencies: Strategy & Communication
Learning Objectives:

  • Describe public health informatics using analogies to logistics, architecture, and translation. 

Training

Informatics for Everyone

Note: An account with Informatics Academy is required in order to view this link. Click here to create an account and/or to log in.

Author: Informatics Academy, Public Health Informatics Institute
Type: Series of short videos
Time Length: 15 minutes
Competencies: Strategy & Communication
Learning Objectives: 

  • Describe public health informatics in action from three perspectives: the practitioner, program manager, and senior leader.

Training

Communicating the Value of Public Health Informatics

Author: Dr. Kelley Chester, Council of State & Territorial Epidemiologists
Type: Webinar
Time Length: 40 Minutes
Competencies: Strategy & Communication
Learning Objectives:

  • Define the 7 Principles of Effective Communication.
  • Define and communicate informatics to technical and non-technical audiences.
  • Describe the essentials of a good elevator speech.
  • Discuss knowledge overlaps and gaps and how to communicate and engage with stakeholders.