The INBSI members include NBS Programs from these states, territories, and jurisdictions.
We are excited to participate in the INBSI project and utilize everything that it has to offer. The staff training will help us build a more knowledgeable and proficient team. We are looking forward to collaborating with other NBS programs to learn from their experiences and to contribute to a national harmonization. The roadmap will be an invaluable resource as we implement electronic NBS orders in California. With these resources, we will be able to reach our interoperability goals.
District Of Columbia
The DC Department of Health (DC Health) Newborn Screening Program’s participation in the new Innovations in Newborn Screening Interoperability (INBSI) Resource Center and Learning Collaborative will assist the program in further enhancing the program to both ensure that newborns born in the District are screened for metabolic, endocrine, hemoglobin, hearing loss and heart disease at birth and ensure those with abnormal or incomplete test results receive timely and appropriate follow-up, confirmatory diagnoses and treatment. To achieve these goals and improve data access and quality, expanding newborn screening interoperability in the District will be an essential part of the DC Newborn Screening Program.
The Innovations in Newborn Screening Interoperability (INBSI) Resource Center and Learning Collaborative is an excellent opportunity for newborn screening state programs in collaboration with the newborn screening laboratory to identify the next steps in the process to implement and improve data interoperability. Through interoperability, Indiana’s program goals include automatic and efficient business processes, access to real-time data, reduced lag-times from data sources, implementation of modern data standardization and management practices while focusing on outcomes and program performance. Indiana believes this opportunity will expand our understanding while working collaboratively with other states to implement interoperability standards for newborn screening.
Kentucky has joined the INBSI project to advance DBS, EHDI, and CCHD screening interoperability with hospitals across the state. A broadly representative team has been assembled to assist with this effort, and all members are dedicated to improving the state of NBS interoperability for their jurisdiction. With a focus on Dried Blood Spot and lab reporting, their team’s vision includes reducing the need for double-data-entry for providers and wider adoption of HL7 v2 standards.
The Michigan Newborn Screening Program has a solid foundation for electronic data exchange and interoperability. The vision for the INBSI project includes increasing engagement with hospitals interested in implementing HL7 messaging; dedicating time and resources to finalize NBS DBS laboratory order and result messages; receiving technical assistance in addressing barriers with hospitals, MDHHS and vendors; and reestablishing NBS as an interoperability priority at MDHHS.
Participating in INBSI offers the Oregon Public Health Division (EHDI, BASS and NWRNBS) Programs an opportunity to build capacity as a cohesive group while learning best practices and creating a value proposition for incentivizing or mandating data exchange. This collaborative learning effort is especially valuable given the disparate locations within Oregon’s Public Health Division. We hope that through the INBSI strategic planning collaborative (particularly with participation across three programs) we can be better prepared to guide any future legislation for sustaining modernized data flows.
Participation in the INBSI project will help understand barriers and solutions in other states and help RIDOH understand which enhancements or new file exchanges would improve the quality, timeliness, and access to newborn screening data. RIDOH is very interested in completing the interoperability roadmap as a way to evaluate options for expanding or improving the existing non-HL7 newborn screening data exchange.